DETAILS

Whether you’re a patient, caregiver, or healthcare professional, this free event offers valuable insights from UCLA and other scleroderma experts, community connection, and strategies for living well with scleroderma. Admission and parking are free, and morning refreshments and lunch will be served. (Some topics and speakers may be subject to change) So Cal Patient Education Day Saturday, December 5th from 8AM to 3PM Where: HOTEL MdR ~ A DoubleTree by Hilton Hotel: 13480 Maxella Avenue, Marina del Rey, CA 90292 AGENDA: 8AM to 9AM-check in registration/morning refreshments 9AM to 9:10 AM Opening Speech/Welcome 9:10AM to 9:50AM: Dr. Joel Epstein- Oral Care in scleroderma 9:50AM to 10:40AM: Dr. Sam Good- The Effects of Trauma and Stress on the Development of Scleroderma 10:40AM to 11:20AM: Dr. Mihaela Taylor -A Holistic Approach Balancing Fatigue 11:20AM to 11:30 AM 10-minute stretch break 11:30AM to 12:10PM Dr. Rajan Saggar - The Benefits of Pulmonary Rehab 12:10PM to 1:10PM LUNCH 1:15PM to 1:55M Dr. Suzanne Kafaja The Evolution of Research in Scleroderma and What It Means For You? 1:55PM to 2:55PM: Purpose Beyond Diagnosis: How Volunteers Shape the Chronic illness Journey 2:55PM to 3:00PM closing speech and audience surveys